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User participation in research

The purpose of user participation in research is to improve the research's relevance by ensuring that the users' experiences, needs and perspectives are reflected in the research. ‍

REMEDY has a separate patient council with members who participate with their experience in all research projects.

Contact person

Consultant in user participation in research

Marianne Skaar

User participation in research at REMEDY consists of:

  • Forums for knowledge and professional development for members of the REMEDY patient council
  • Course in user participation in research for researchers, PhD scholars and user contributors
  • Research support in user participation in research for PhD candidates, postdocs and researchers
  • Collaboration with partners within REMEDY as well as external partners on the development of the field of user participation in research

Resources in user participation in research

You can see more about what user participation in research entails here . ‍

The European Alliance of Associations for Rheumatology (EULAR)'s patient organisation, PARE, has prepared a booklet and eight cards with advice on user participation in research. These were translated into Norwegian in 2016 at the rheumatology department at Diakonhjemmet Hospital. Read more about EULAR and user participation. Here is the Norwegian version of the cards and the booklet .