The purpose of user participation in research is to improve the relevance of research by reflecting the users' experiences, needs and perspectives in the research.
REMEDY has its own patient advisory board with members who participate with their experiential expertise in all research projects.
Advisor in user participation in research Marianne Skaar
User participation in research at REMEDY consists of:
Forums for knowledge and professional development for members of the REMEDY patient advisory board
Course in user participation in research for researchers, PhD students and user participants
Research support in user participation in research for PhD candidates, postdocs and researchers
Collaboration with partners within REMEDY and external partners on the development of the field of user participation in research
Resources in user participation in research
You can read more about what user involvement in research entails here.
The European Alliance of Associations for Rheumatology (EULAR)'s patient organization, PARE, has prepared a booklet and eight cards with advice on user involvement in research. In 2016, these were translated into Norwegian at the Department of Rheumatology at Diakonhjemmet Hospital. Here is the Norwegian version of the cards and booklet.