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User participation in research

The purpose of user participation is to ensure that research is relevant and useful. When users are involved, they help to ask relevant questions in areas where new knowledge is needed. By including their perspectives, the research is more likely to be more relevant and applicable in practice.

REMEDY works according to a model to increase competence and collaboration between researchers and user collaborators in research projects. 

The model consists of an interaction between clinical expertise, research and patient perspective.

Contact person

Advisor in user participation in research

Marianne Skaar

User participation in research at REMEDY includes

  • REMEDY patient council with members who participate with their experience and expertise in all research projects. The council consists of both people with experience and expertise in rheumatic and musculoskeletal diseases and researchers. This is a forum for knowledge development and experience sharing for the members. 

  • Course in user participation in medical and health research for researchers, PhD fellows and user collaborators in collaboration with the University of Bergen and other major research centers for clinical treatment.

  • Research support in user participation in research associated with the REMEDY research center for PhD candidates, postdocs and researchers

  • Collaboration on the development of the field of user participation in research with partners in REMEDY, as well as external partners, including through the national advisory network

User participation in various phases of research projects

More about user participation in research

🎬 Webinar on user participation in research 

🎬 Webinar on EULAR updated recommendations on user participation in research

EULAR's recommendations are from 2023 and are a collaboration between researchers and user contributors from many European countries. Read more

📄 Norwegian version EULAR recommendations.pdf

The European Alliance of Associations for Rheumatology (EULAR)'s patient organization, PARE, has prepared a booklet and eight cards with advice on user participation in research.

These were translated into Norwegian by the rheumatology department at Diakonhjemmet Hospital in 2016. Read more about EULAR and user participation.

Here is the Norwegian version of the cards and booklet .