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User participation in research

The purpose of user participation is to ensure that the research is relevant and useful. When users are involved, they contribute to asking relevant questions in areas with a need for new knowledge. By including their perspectives, the chance that the research will hit the mark and become more applicable in practice increases.

REMEDY works according to a model to increase competence and cooperation between researchers and user assistants in research projects. 

The model consists of an interaction between clinical expertise, research and the patient's perspective.

Contact person

Consultant in user participation in research

Marianne Skaar

User participation in research at REMEDY contains

  • REMEDY patient council with members who participate with their experience in all research projects. The council consists of both people with experience in rheumatic and musculoskeletal diseases and researchers. This is a forum for knowledge development and experience sharing for members. 

  • Course in user involvement in medical and healthcare research for researchers, PhD scholars and user assistants in collaboration with the University of Bergen and other major research centers for clinical treatment.

  • Research support in user participation in research associated with the REMEDY research center for PhD candidates, postdocs and researchers

  • Collaboration on the development of the field of user participation in research with partners in REMEDY, as well as external partners, including through the national adviser network

User participation in various phases of research projects

More about user participation in research

Watch a webinar on what user participation in research entails here . ‍

The European Alliance of Associations for Rheumatology (EULAR)'s patient organisation, PARE, has prepared a booklet and eight cards with advice on user participation in research. These were translated into Norwegian in 2016 at the rheumatology department at Diakonhjemmet Hospital. Read more about EULAR and user participation. Here is the Norwegian version of the cards and the booklet .