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RehabNytte - impact

User participation in the health service

Project Manager
Physiotherapist | PhD

Senior researcher Rikke Helene Moe

PhD scholarship holder
Sports science

Joachim Sagen

ABOUT THE PROJECT

The overall aim of the study is to obtain knowledge about organisation, implementation and quality in user participation at system and individual level in the health service.

According to the Norwegian Healthcare Organizations Act, healthcare organizations are obliged to establish user committees. The few studies that have evaluated how the user committees work show that there is great variation in the degree of user participation, that healthcare personnel largely control the committees and that user participation works better at an overall level than in a clinic. There is also a need to evaluate user participation at an individual level. This is made possible in the field of rehabilitation with a new set of quality indicators. In the multi-centre study RehabNytte, this set will be used to evaluate perceived user involvement for approximately 2,000 patients with various diagnoses who have undergone rehabilitation at 17 rehabilitation institutions.

WHO CAN JOIN?

The study includes adult patients who have undergone rehabilitation in private rehabilitation institutions. Inclusion of patients has been completed and no more participants are being recruited.

WHAT DOES THE STUDY INCLUDE?

We will explore user participation at system and individual level by

  1. summarize available knowledge about how users are involved in the development and evaluation of healthcare services and how such involvement can affect the quality of the healthcare service
  2. examine how users in user committees describe the influence in decision-making processes at health institutions, and
  3. examine how user participation is structured in individual rehabilitation processes at rehabilitation institutions in Norway, and how patients report that they are involved in the rehabilitation process. The results will have a major impact on how we organize user participation in the health service in the future.

The results of the study are expected to have a major impact on how we organize user participation both at system and individual level in the health service, and will be able to highlight areas in need of improvement. The knowledge will thus help to strengthen user participation in all parts of the health service.

Publications

Patient Involvement in the Rehabilitation Process Is Associated with Improvement in Function and Goal Attainment: Results from an Exploratory Longitudinal Study.

Sagen JS , Kjeken I, Habberstad A, Linge AD, Simonsen AE, Lyken AD, Irgens EL, Framstad H, Lyby PS, Klokkerud M, Dagfinrud H, Moe RH; RehabNytte Consortium. J Clin Med. 2024 Jan 6;13(2):320. doi: 10.3390/jcm13020320.PMID: 38256454 Free PMC article.

Patient engagement in the development and delivery of healthcare services: a systematic scoping review.

Sagen JS , Smedslund G, Simonsen AE, Habberstad A, Kjeken I, Dagfinrud H, Moe RH.BMJ Open Qual. 2023 Jun;12(2):e002309. doi: 10.1136/bmjoq-2023-002309.PMID: 37369560 Free PMC article.

Organisation, influence, and impact of patient advisory boards in rehabilitation institutions - an exploratory cross-sectional study.

Sagen J , Børøsund E, Simonsen AE, Habberstad A, Kjeken I, Dagfinrud H, Moe RH. BMC Musculoskeletal Disord. 2022 Aug 2;23(1):738. doi: 10.1186/s12891-022-05678-y.PMID: 35915435 Free PMC article.

The Public and Patient Engagement Evaluation Tool: forward-backwards translation and cultural adaptation to Norwegian.

Garratt A, Sagen J , Børøsund E, Varsi C, Kjeken I, Dagfinrud H, Moe RH. BMC Musculoskelet Disord. 2022 Jun 9;23(1):556. doi: 10.1186/s12891-022-05514-3.PMID: 35676674 Free PMC article.