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RehabBenefit - impact NOR

Patient engagement in the health service

Project manager
Physiotherapist | PhD

Senior Researcher Rikke Helene Moe

Sports Science PhD 
Sports Science

Joachim Sagen

ABOUT THE PROJECT

The overall goal of the study is to gain knowledge about the organization, implementation and quality of user participation at the system and individual levels in the health service.

According to the Health Trust Act, health trusts are obliged to establish user committees.

The few studies that have evaluated how user committees work show

  • that there is great variation in the degree of user participation
  • that healthcare personnel largely control the committees 
  • that user participation works better at a general level than in the clinic

There is also a need to evaluate user participation at the individual level.

This is made possible in the rehabilitation field with a new set of quality indicators.

In the multi-center study, RehabNytte, this set will be used to evaluate perceived user participation in around 2,000 patients with various diagnoses. These patients have been undergoing rehabilitation at 17 rehabilitation institutions.

WHO CAN JOIN?

The study includes adult patients who have undergone rehabilitation in private rehabilitation institutions and user representatives in user committees in rehabilitation.

Inclusion is complete and no more participants are being recruited

WHAT DOES THE STUDY INVOLVE?

We explore user participation at the system and individual level by

  • summarize available knowledge about how users are involved in the development and evaluation of health services and how such involvement can affect the quality of health services,
  • explore how users in user committees describe their influence in decision-making processes at healthcare institutions
  • investigate how user participation is structured in individual rehabilitation processes at rehabilitation institutions in Norway 

We will also look at how patients report being involved in rehabilitation processes.

The results will have an impact on how we organize user participation in the health service in the future.

The results of the study are expected to have an impact on how we organize user participation at both the system and individual levels in the health service, and will be able to highlight areas that need improvement. The knowledge will thus be able to contribute to strengthening user participation in all parts of the health service.

Publications

Patient Involvement in the Rehabilitation Process Is Associated with Improvement in Function and Goal Attainment: Results from an Exploratory Longitudinal Study.

Sagen JS , Kjeken I, Habberstad A, Linge AD, Simonsen AE, Lyken AD, Irgens EL, Framstad H, Lyby PS, Klokkerud M, Dagfinrud H, Moe RH; RehabNytte Consortium.J Clin Med. 2024 Jan 6;13(2):320. doi: 10.3390/jcm13020320.PMID: 38256454 Free PMC article.

Patient engagement in the development and delivery of healthcare services: a systematic scoping review.

Sagen JS , Smedslund G, Simonsen AE, Habberstad A, Kjeken I, Dagfinrud H, Moe RH.BMJ Open Qual. 2023 Jun;12(2):e002309. doi: 10.1136/bmjoq-2023-002309.PMID: 37369560 Free PMC article.

Organisation, influence, and impact of patient advisory boards in rehabilitation institutions - an exploratory cross-sectional study.

Sagen J , Børøsund E, Simonsen AE, Habberstad A, Kjeken I, Dagfinrud H, Moe RH. BMC Musculoskeletal Disord. 2022 Aug 2;23(1):738. doi: 10.1186/s12891-022-05678-y.PMID: 35915435 Free PMC article.

The Public and Patient Engagement Evaluation Tool: forward-backwards translation and cultural adaptation to Norwegian.

Garratt A, Sagen J , Børøsund E, Varsi C, Kjeken I, Dagfinrud H, Moe RH. BMC Musculoskelet Disord. 2022 Jun 9;23(1):556. doi: 10.1186/s12891-022-05514-3.PMID: 35676674 Free PMC article.