Communication overview

With the REMEDY center's goal of research to improve patient care, communication is essential to shorten the time from when the result is available to when it benefits the patients.

This overview and plan should be a working tool for deciding channel choices for different messages to reach the desired target groups. The individual projects' milestones form the starting point for communication activities.

Organization

Center director	Espen A. Haavardsholm, Diakonhjemmet hospital, head of REMEDY
Responsible for development of the plan	Kathrine Daniloff, Diakonhjemmet hospital, NKRR, Remedy This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it. , This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it. +47 90057192
Contributor/collaborator	Camilla Stabell, Norwegian Association of Rheumatists, This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it. + 47 41511838
Contributor/collaborator	Leticia Kawano-Dourado, Magic, This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it. t. +47 484 05 969 Twitter: @leticiakawano
Contributor/collaborator	Mette Magnhild Heitmann Akerø, Oslo University Hospital, This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it.
Contributor/collaborator	Elin Martine Doeland, Klinmed UiO, +47 22844655 90913903, This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it.

Background

REMEDY is a research center for clinical treatment (FKB) in rheumatology and musculoskeletal disorders (RMDs). The purpose is to improve the treatment of patients through clinical research. This must be communicated to relevant stakeholders so that scientific findings benefit patients.

Communication is an important part of the research process, from the start to possible implementation in the clinic. To be successful, the projects must communicate well with its various target groups in addition to exposing the stakeholders to current information.

Scientific meeting places and scientific publications are essential arenas for science sharing and networking. In order to implement important research results as quickly as possible, the stakeholders must become aware of the projects before the results are known. Strategic communication efforts, beyond the traditional arenas, will contribute to the purpose of the centre.

Purpose of the communication work

Contribute to relevant target groups and stakeholders becoming familiar with new clinical research so that patients receive the best possible treatment

This will happen through communication measures that contribute to

· update people with RMDs, their relatives and healthcare professionals in the field

· increase awareness of REMEDY's ongoing projects and contribute to REMEDY's good reputation

· make REMEDY's results known to patients, researchers and decision-makers

· facilitate academic and financial collaborations

· raise awareness of unmet need in RMDs

· strengthen the sense of community and familiarity with the centre's various activities for employees and partners in REMEDY (internal communication)

Communication strategy

o The communication work must be practiced within the framework of sustainability and the EU's recommendations relating to scientific impact, societal impact and innovation impact

o Research results and new treatment methods must be communicated in an up-to-date and comprehensible manner for various target groups and stakeholders.

o Each project must have a communication plan to build awareness of the studies and the REMEDY centre

o Collaboration partners' existing channels must be used to communicate research results and new treatment methods

o Use the stakeholders' channels to communicate research results and new treatment methods

o Own website www.remedy-senter.no , LinkedIn, twitter, newsletter and press releases

o REMEDY's communication must be co-ordinated, clear and uniform

o Consistent use of style, tone, theme and graphics is important to ensure a strong sender identity across efforts, logo/design is based on REMEDY's graphic profile NB: link to downloadable profile at https://www.remedy-senter.no /

Partners

Diakonhjemmet hospital in Oslo is the host institution. Partners are Oslo University Hospital, the Department of Clinical Medicine at the University of Oslo, the MAGIC Evidence Ecosystem Foundation (MAGIC) and the Norwegian Rheumatism Association. The center has laboratory collaboration with Radiumhospitalet.

University of Oslo (UiO): Department of Clinical Medicine. Responsible for education and research in all clinical subjects. Collaboration with Benedicte Lie, This email address is protected from programs that collect email addresses. You need JavaScript enabled to view it. .

Oslo University Hospital (OUS): Department for Rheumatology, Skin and Infectious Diseases and Department for Research and Innovation (Nevroklinikken), which is also responsible for the Research Unit for Musculoskeletal Health (FORMI). REMEDY has close collaboration with Regional Research Support and NorCRIN.

The Norwegian Rheumatism Association (NRF) is one of the largest health organisations, with around 30,000 members. NRF will contribute to the development of prioritized research areas and collaborate closely with REMEDY Patient Council in connection with user participation in research. NRF will also assist in disseminating research results in REMEDY through its channels and local teams.

The Magic Evidence Ecosystem Foundation will assist with knowledge summaries and updated guidelines. MAGIC will translate new research findings into clinical practice through BMJ Rapid Recommendations, also to be adapted and translated for national use and implementation.

Internal target groups

Description: Get access to information from REMEDY for dissemination in its channels

Target group	Role	Channels
Employees at DS		The work platform Induct, newsletter, website(s), e-mail etc
Employees of REMEDY	Research
The partners NRF, Magic, UiO, OUS	Partner
National clinical network	Research
Network of the partners' communication staff	Communication
Practice consultants at rheumatology departments in Norway	Practice consultant at Diakonhjemmet hospital

External target groups and collaboration partners, nationally and internationally

Description: Provide information about the centre, the research and new results

Target group	Role
Patients	The ultimate target group, which represents a diversity of education, age, gender, diagnoses etc The patients are also channels for spreading information about new research via epicrisis to GPs and word of mouth
Patient organisations	Provide patient information to members and others
Health personnel in the specialist health service	Provide appropriate treatment/disseminate information/research collaboration
Healthcare personnel in the primary healthcare service	Provide the correct treatment/spread information and possibly refer patients to a specialist
Regional health undertakings	Information for healthcare personnel/patient information/ /decision makers
Funders (public and private)	Allocate funds/get reports
Journalists	Make the research "understandable" and put matters on the agenda
Other researchers in the field	Network/collaboration, nationally and internationally
Politicians	Budget and agenda

External channels are used as needed


Remedy-senter.no REMEDY's website is the centre's authoritative channel

The REMEDY centre's website with projects, publications, staff and templates

Other websites
Patients and others
Diakonhjemmet.no	The hospital
Healthcare	Patient orientation. Publish all clinical research here. Overview of diseases and treatments
rheumatiker.no	Patient information
Spondyloarthritis Association, Spafo Norway
Bechterev Norway
Other hospitals
Forskning.no	An online newspaper with Norwegian and international research news
Researchers and others
http://www.magicevidence.org/	International research
Revmabloggen.no	Primarily for researchers
Uio.no
UIO/Klinmed	Research projects and results
The musculoskeletal system MUSS
NKRR project overview
OUS	Research projects and results

Handlers and others
NKRR.no , clinical toolbox ,	National competence service for rheumatology rehabilitation
Norwegian Rheumatology Association	Research projects and results
NIOR -	The membership organization for multidisciplinary health personnel in rheumatology
FSR – NSF	Professional group for nurses in rheumatology
National Competence Center for Pregnancy and Rheumatic Diseases (NKSR)
Rehabilitation institutions
FHI -	Incomplete overview of diseases and studies, nothing found about rheumatic diseases
Directorate of Health -	Incomplete overview of diseases and studies, nothing found about rheumatic diseases

Mailing lists
*Various address lists that can be used for direct information when needed*
Members of the NRF	Camilla Stabell
Clinical Research Network	Rikke Helene Moe/Marte Heiberg
The practice consultants' list for GPs	Tove Borgen
NKRR	Those who want news from NKRR – Kathrine Daniloff
Employees REMEDY

Social media (SoMe) - small and large about the field, as needed
*All cases in social media must contain #REMEDYSENTER + #RMD to be found in searches*
Deacon home SoMe: Facebook and Instagram	Drive traffic to relevant websites about current issues - for patients
Deacon home LinkedIn	Position available. Research results.
Revmabloggen-Facebook	Various cases, article recommendations, research results
Facebook group: "The group for those who refer to Diakonhjemmet hospital"	Communication with GPs, e.g. when recruiting for studies
NIOR FB	Communication with multidisciplinary health personnel within rheumatology
FSR FB	NB- closed group! Communication with nurses in rheumatology. Web manager FSR
REMEDY LinkedIn	A strong channel depends on regular posts. Posts can be: research results, awards, job advertisements
REMEDY twitter	One-way dissemination of new research
NRF Facebook	Commitment, enlightenment
NRF local team Facebook pages	Parts from the main page + local events
NRF Instagram	Advice and facts
NRF's children's and youth organization (BURG), Facebook and Instagram, and local teams	Advice, facts, commitment (target group both children, young people and parents)
NRF LinkedIn	Could be communication with researchers /behind the scenes
OUS SoMe	Involvement
UiO SoMe	Involvement
Researchers' own Twitter accounts, linkedIin profiles etc	Build an audience with relevant records in the field, tag REMEDYSENTER

Webinar/podcast
//www.youtube.com/@NKRR ">NKRR - youtube	Reprofile, either REMEDY or NBRR?
NRF - youtube , and other webinars	Streamed through various channels, for members
NRF - Revma podden	Podcast with current topics and guests
NKSR – Revmamas	Podcast
The tear map pod	Jens Vikse, podcast aimed at rheumatologists

Publications
R – NRF's member magazine	Membership magazine with a circulation of 30,000, four issues a year
The rheumatologist	Magazine for rheumatologists (Norwegian Rheumatology Association)
The spondylitis	Member magazine from Spafo
Annual report for the specialist health service

Newsletter
NRF	To the members
NRF diagnosis groups	To the members of the groups
REMEDY - partners	New from REMEDY to the network
Revma innovation and research, internally at Diakonhjemmet hospital	Internal information
National clinical network	Internal information

Media
Press release	New research results with significance for many, or which lead to new treatment recommendations. Preferably with a patient case.
Direct sales to several people	Contact journalists/editors
Exclusive sales	Get in touch with the relevant editors, who will be the first to publish a piece of news
Journalist handling	Positive attitude to requests from journalists, building relationships

Lobbying
NRF	Interest political work
Various arenas	Active participation in relevant arenas, e.g. meetings under the auspices of NORCRIN, NORTRIALS, the Research Council, FKB, etc etc
REMEDY and other partners?
EULAR/EMEUNET/GRAPPA/ASAS	Get employees from REMEDY into central positions in relevant organisations, participate in task forces, recommendations etc


Databases
CRISTIN	All research is registered here
HealthNorway	Overview of ongoing clinical research
Clinical trials	International research database

Arrangements
The dialogue seminar with NRF	Dialogue between researchers, clinicians and patients (NRF). Organized twice a year. In the spring with the Rikshospitalet (connective tissue diseases) and in the autumn with the Diakonhjemmet
Green Congress	Once a year (summary from the EULAR congress) June
Physiotherapy professional day	Professional day every or every two years
Occupational therapy professional days	Annual professional days
MOUSE	Annual conference on musculoskeletal research
EULAR Congress	Annual congress under the auspices of EULAR
The network conference for rheumatology rehabilitation	Different every year
NRF Christmas meeting
ACR	Annual conference on RMDs, in the USA
OARSI	Annual conference on osteoarthritis
SCR	Scandinavian conference, every two years

World Health Days
Arthritis Day	February 2
International day for women and girls in research	February 11
National Rheumatism Day	March 15
World Health Day (UN)	April 7
Hereditary osteoporosis	May 6
World Clinical Trials Day	May 20
World Physiotherapy Day	September 8
World Heart Day (UN)	September 29
Arthritis EULAR	12 October
World Osteoporosis Day	20 October
World Statistics Day	20 October
World Occupational Therapy Day	October 27
World Psoriasis Day	October 29
World Science Day (UNESCO)	10 November
International day for people with disabilities	December 3

Communication plan for dissertations

All dissertations must follow a communication plan belonging to the individual companies' policies.

Evaluation of communication effects

Have we achieved the desired effects of the communication work?

It must be assessed against media coverage, newsletters, posts, likes and views on social media, participants in webinars and seminars and user surveys and so on.

This must be linked to ongoing registration of publication and dissemination activities, online form etc. against the Norwegian Research Council.

Practical

· Link to year wheel with the most important events for REMEDY

· Link to phone list in xcel:

o contact persons within REMEDY by mobile and e-mail

o communication contact persons, both DS and partners, mobile and e-mail

o management in REMEDY, wp-leads, project managers - achieve quick contact in case of inquiries from journalists etc

Communication plan for the individual projects/studies

A communication plan with tentative dates must be drawn up for each project, in collaboration with the communication advisor.

During each project that includes patients, particularly suitable patients must be registered so that they can be contacted on a later occasion, for media purposes etc. This must be in accordance with the GDPR.

At each milestone, the project manager must assess whether it is appropriate to release information, before contacting a communications advisor to take measures, such as updating the website, preparing a press release, newsletter content, taking pictures, preparing illustrations, SoMe posters, etc.

Before each publishable discovery and major publication, the project manager must provide the communications advisor with a text base for press releases and communication in preferred, accessible channels as soon as possible.

Posts in social media (SoMe) are tagged with #remedysenter and #rmd #rmds and other tags for searchability

Milestones for communication	Communication measures are assessed based on the channel overview in the communication plan
Project start/ Allocation of funds
	The project is presented on its own website at https://www.remedy-senter.no/ , https://www.diakonhjemmetsykehus.no/ and helsenorge
	Press release w/issue in the project page + quote(s) from the head of the study + pictures + SoMe
Searching for patients
	Update the website
	Possibly patient history from pilot study to media issue
Inclusion done
	Update the website + SoMe

Patients for various media
	Take care of the patient case during the study. Procedure under development
Findings that can be made public
	Update the website + all SoMe
Available publication
	Contact the communications advisor as soon as possible when publication is approaching
	Update the website + all SoMe